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My one month update

I am 42 years old and have DF508 / N1303K. I was diagnosed at 3 months of age and did not have lung infection or...

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Cycling For A Better Tomorrow

On September 23, a cycling event in the Sacramento, California area will take place and Sharktank Research will be one of the beneficiaries.  This is...

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TauriNAC Coming Soon

By the end of May, Planetary Biosciences will be releasing TauriNAC.  We have been working on this over the last year, and we are just...

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Beginning the Indrepta B journey at age 42 with DF508 and N1303

A bit of quick history on me first.... I have always been pancreatic insufficient but I didn't develop a chronic cough until age 18 after...

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Indrepta for 9 and 11 year olds

I just thought I'd report to you that I'd taken my daughter (9 yo w/CF) to her pediatrician yesterday to see about what seemed like...

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Indrepta for 4 months (A & B)

I have been taking Indrepta since the beginning of January 2017. I have been taking 3 pills 3x a day, but I have found it...

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Quantitative vs. qualitative disrupt paradigm idea user story parallax user story prototype. Steve Jobs entrepreneur human-centere

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It's our challenges and obstacles that give us layers of depth and make us interesting. Are they fun when they happen? No. But they are what make us unique. And that's what I know for sure... I think.

A thoughtful blockquote post on life

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Quantitative vs. qualitative disrupt paradigm idea user story parallax user story prototype. Steve Jobs entrepreneur human-cen

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Quantitative vs. qualitative disrupt paradigm idea user story parallax user story prototype. Steve Jobs entrepreneur human-cen

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