Some CF patients have achieved treatment results that are nothing short of spectacular using natural compounds. For example, Samantha, a parent of a child with CF, has created a website called Dutch Magic Factory: http://dutchmagicfactory.blogspot.com . Dutch Magic Factory details Samantha’s journey...
Several of us have known Francis (Frank) X Via from his CF group Inveniemus Viam Aut Faciemus. Unfortunately, he passed away on January 20, 2016. All who knew him appreciated his extensive knowledge base of all things related to CF, particularly...
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With the imminent approval of the cystic fibrosis combination drug Orkambi, you would expect a great celebration regarding progress to cure CF. However, I find myself asking if this is an incremental improvement toward something greater; or a case of...
Although this article was posted in the New Yorker magazine in December 2004, it contains some very interesting insights into the variable quality of care at the CF centers around the country. http://www.newyorker.com/magazine/2004/12/06/the-bell-curve
Sharktank has just overhauled the entire website with several goals in mind. First, we wanted to have an updated look and layout. Then we wanted to utilize a system where the site could be updated more easily so the data...
The spice Turmeric is commonly used to flavor curry and to color mustard. There is accumulating anecdotal evidence that Curcumin, a component of Turmeric, may alleviate some of the symptoms of Cystic Fibrosis, and several laboratory studies support potentiation of...
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About one to two hours after eating some food, the partially digestedfood is then moved to the duodenum (start of the small intestine). When the food reaches the duodenum, two hormones are released into thebloodstream to signal the pancreas. These are...
Cellular Pathophysiology of Cystic Fibrosis Submitted by Terry White Outside the cell: Author Reference Symptoms Accurso 2-fold Increased PMNs, even in BAL from asymptomatic 2.4 month old infants. 10-20 fold increase in lactoferrin (probably from PMNs) by 5 years, 3 fold...