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Category Archives: Indrepta

Experiences related to the use of Indrepta

My one month update

I am 42 years old and have DF508 / N1303K. I was diagnosed at 3 months of age and did not have lung infection or complications until 18 years of age. I have always been pancreatic insufficient. The last 18 …

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Beginning the Indrepta B journey at age 42 with DF508 and N1303

A bit of quick history on me first…. I have always been pancreatic insufficient but I didn’t develop a chronic cough until age 18 after getting my first respiratory infection during my first semester away at college. I gave birth …

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Indrepta for 9 and 11 year olds

I just thought I’d report to you that I’d taken my daughter (9 yo w/CF) to her pediatrician yesterday to see about what seemed like labored respirations. She’d had a head cold for 3 1/2 weeks and then this last …

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Indrepta for 4 months (A & B)

I have been taking Indrepta since the beginning of January 2017. I have been taking 3 pills 3x a day, but I have found it very helpful to start out with a low dose, just starting with 1 a day, …

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30 Days on Indrepta

Click here…

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Indrepta A to B

Hi, I have df508 and r553x Cf mutations. I’ve been taking Indrepta since November 2016. I didn’t notice a lot of difference, but I did seem to cough up more stuff than usual after taking it for about 5 days. …

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CF Carrier Experience

I do not have CF, I’m a carrier of dF508 mutation, aged 64, with mild non-specific auto-immune disease (subclinical hypothyroid, Raynaud’s phenomenon, joint & muscle pain, fatigue, elevated ANA), as well as possible CF carrier symptoms (salty sweat, sinus problems, …

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A and B

2 days in: Yesterday I experienced extreme detox type symptoms. Headache, achey, fatigue, shortness of breath, increased cough and chest irritation. Today… I feel amazing. Normal, no oxygen, bubbly, I’m actually going out and about. *** 10 days in Friday …

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