Blog

Indrepta Plus in manufacturing phase

First of all, thanks to everyone for supporting our crowdfunding for Indrepta Plus. It was very successful. We are now in the manufacturing phase and hope to have to product any day now. As soon as we receive it we...

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Anxiety in CF: Can CBD oil help?

Most CF patients experience anxiety about their health. Anxiety and depression may be increased by ingestion of many common CF drugs and therapies (1,2). Is it possible that CBD oil could help with anxiety? Cannabidiols (CBD) are reported in the...

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Introducing the Wellness Protocol

Today we announce the release of Sharktank Research Foundation’s new WELLNESS PROTOCOL. This plan has been years in the making, in fact, since Sharktank was formed. It represents the pooled experiences of many adult CF patients and parents of CF...

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Happy New Year

As we enter into 2018, I wanted to take a moment to talk about the things we accomplished in 2017 and what we have in store for this coming year.  After launching Indrepta A and B in November 2016, we...

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Cycling for a Better Tomorrow 17

I got back Sunday night after spending the weekend in Lincoln, CA (Sacramento area) representing Sharktank at the Cycling for a Better Tomorrow event.  The event was masterfully organized by Pete Tucker.  The volunteers were very helpful and all had...

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Sharktank Events in California

Sharktank Research Foundation will be showcased with great awareness opportunities in Northern California! With branded marketing materials on hand, Sharktank has positioned itself to increased exposure and as well as being an appreciative beneficiary at two large cystic fibrosis awareness...

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TauriNAC now ready

Thanks to everyone at Sharktank, we finally have the TauriNAC product finished.  It is now available at Planetary Biosciences.  There are some extended release notes on the product page.

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My one month update

I am 42 years old and have DF508 / N1303K. I was diagnosed at 3 months of age and did not have lung infection or complications until 18 years of age. I have always been pancreatic insufficient. The last 18...

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Cycling For A Better Tomorrow

On September 23, a cycling event in the Sacramento, California area will take place and Sharktank Research will be one of the beneficiaries.  This is a great event organized by Pete Tucker, who has many years of CF fundraising to...

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TauriNAC Coming Soon

By the end of May, Planetary Biosciences will be releasing TauriNAC.  We have been working on this over the last year, and we are just waiting on manufacturing to finish the product.  It will come in convenient pouches that can...

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