I am 42 years old and have DF508 / N1303K. I was diagnosed at 3 months of age and did not have lung infection or complications until 18 years of age. I have always been pancreatic insufficient. The last 18...
On September 23, a cycling event in the Sacramento, California area will take place and Sharktank Research will be one of the beneficiaries. This is a great event organized by Pete Tucker, who has many years of CF fundraising to...
By the end of May, Planetary Biosciences will be releasing TauriNAC. We have been working on this over the last year, and we are just waiting on manufacturing to finish the product. It will come in convenient pouches that can...
A bit of quick history on me first.... I have always been pancreatic insufficient but I didn't develop a chronic cough until age 18 after getting my first respiratory infection during my first semester away at college. I gave birth...
I just thought I'd report to you that I'd taken my daughter (9 yo w/CF) to her pediatrician yesterday to see about what seemed like labored respirations. She'd had a head cold for 3 1/2 weeks and then this last...
I have been taking Indrepta since the beginning of January 2017. I have been taking 3 pills 3x a day, but I have found it very helpful to start out with a low dose, just starting with 1 a day,...
It's our challenges and obstacles that give us layers of depth and make us interesting. Are they fun when they happen? No. But they are what make us unique. And that's what I know for sure... I think.
Quantitative vs. qualitative disrupt paradigm idea user story parallax user story prototype. Steve Jobs entrepreneur human-centered design parallax cortado waterfall is so 2000 and late Space Team unicorn workflow ship it integrate latte.
Quantitative vs. qualitative disrupt paradigm idea user story parallax user story prototype. Steve Jobs entrepreneur human-centered design parallax cortado waterfall is so 2000 and late Space Team unicorn workflow ship it integrate latte.
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Quantitative vs. qualitative disrupt paradigm idea user story parallax user story prototype. Steve Jobs entrepreneur human-centered design parallax cortado waterfall is so 2000 and late Space Team unicorn workflow ship it integrate latte.
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