On Saturday, May 14, I spent the day in Bryan, Texas to participate in the Rock Away Cystic Fibrosis fundraiser. Despite the rainstorms throughout the day, the event was well organized, had great bands playing, and was a nice setting....
Some CF patients have achieved treatment results that are nothing short of spectacular using natural compounds. For example, Samantha, a parent of a child with CF, has created a website called Dutch Magic Factory: http://dutchmagicfactory.blogspot.com . Dutch Magic Factory details Samantha’s journey...
Over the last few months, Sharktank has arranged to rent lab space in the Research Triangle Park area of North Carolina. Click here to see photos. We also have acquired cystic fibrosis cell lines which we are using to test...
Several of us have known Francis (Frank) X Via from his CF group Inveniemus Viam Aut Faciemus. Unfortunately, he passed away on January 20, 2016. All who knew him appreciated his extensive knowledge base of all things related to CF, particularly...
Please support Sharktank's initiative. Click here for details. Alternately you can donate by going to our Donations page.
With the imminent approval of the cystic fibrosis combination drug Orkambi, you would expect a great celebration regarding progress to cure CF. However, I find myself asking if this is an incremental improvement toward something greater; or a case of...
Although this article was posted in the New Yorker magazine in December 2004, it contains some very interesting insights into the variable quality of care at the CF centers around the country. http://www.newyorker.com/magazine/2004/12/06/the-bell-curve
Sharktank has just overhauled the entire website with several goals in mind. First, we wanted to have an updated look and layout. Then we wanted to utilize a system where the site could be updated more easily so the data...
The spice Turmeric is commonly used to flavor curry and to color mustard. There is accumulating anecdotal evidence that Curcumin, a component of Turmeric, may alleviate some of the symptoms of Cystic Fibrosis, and several laboratory studies support potentiation of...