I am 42 years old and have DF508 / N1303K. I was diagnosed at 3 months of age and did not have lung infection or complications until 18 years of age. I have always been pancreatic insufficient. The last 18...
A bit of quick history on me first.... I have always been pancreatic insufficient but I didn't develop a chronic cough until age 18 after getting my first respiratory infection during my first semester away at college. I gave birth...
I just thought I'd report to you that I'd taken my daughter (9 yo w/CF) to her pediatrician yesterday to see about what seemed like labored respirations. She'd had a head cold for 3 1/2 weeks and then this last...
I have been taking Indrepta since the beginning of January 2017. I have been taking 3 pills 3x a day, but I have found it very helpful to start out with a low dose, just starting with 1 a day,...
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Hi, I have df508 and r553x Cf mutations. I've been taking Indrepta since November 2016. I didn't notice a lot of difference, but I did seem to cough up more stuff than usual after taking it for about 5 days....
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The spice Turmeric is commonly used to flavor curry and to color mustard. There is accumulating anecdotal evidence that Curcumin, a component of Turmeric, may alleviate some of the symptoms of Cystic Fibrosis, and several laboratory studies support potentiation of...
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Cellular Pathophysiology of Cystic Fibrosis Submitted by Terry White Outside the cell: Author Reference Symptoms Accurso 2-fold Increased PMNs, even in BAL from asymptomatic 2.4 month old infants. 10-20 fold increase in lactoferrin (probably from PMNs) by 5 years, 3 fold...