I am 42 years old and have DF508 / N1303K. I was diagnosed at 3 months of age and did not have lung infection or complications until 18 years of age. I have always been pancreatic insufficient. The last 18...
I am 42 years old and have DF508 / N1303K. I was diagnosed at 3 months of age and did not have lung infection or complications until 18 years of age. I have always been pancreatic insufficient. The last 18...
A bit of quick history on me first.... I have always been pancreatic insufficient but I didn't develop a chronic cough until age 18 after getting my first respiratory infection during my first semester away at college. I gave birth...
I just thought I'd report to you that I'd taken my daughter (9 yo w/CF) to her pediatrician yesterday to see about what seemed like labored respirations. She'd had a head cold for 3 1/2 weeks and then this last...
I have been taking Indrepta since the beginning of January 2017. I have been taking 3 pills 3x a day, but I have found it very helpful to start out with a low dose, just starting with 1 a day,...
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Hi, I have df508 and r553x Cf mutations. I've been taking Indrepta since November 2016. I didn't notice a lot of difference, but I did seem to cough up more stuff than usual after taking it for about 5 days....
I do not have CF, I'm a carrier of dF508 mutation, aged 64, with mild non-specific auto-immune disease (subclinical hypothyroid, Raynaud's phenomenon, joint & muscle pain, fatigue, elevated ANA), as well as possible CF carrier symptoms (salty sweat, sinus problems,...
2 days in: Yesterday I experienced extreme detox type symptoms. Headache, achey, fatigue, shortness of breath, increased cough and chest irritation. Today... I feel amazing. Normal, no oxygen, bubbly, I'm actually going out and about. *** 10 days in Friday...